Many who meet me ask, "Why are you in a wheelchair?"
The answer is simple. Multiple Sclerosis.
The text below was shamelessly ripped off from my friends at the
National Multiple Sclerosis Society and describes MS in case you
hadn't heard of it...
Like many people afflicted with MS, I was struck down at the height of
my career. 44 years old, making 6 figures in a job I loved so much that I
always said they paid me to play all day. Fortunatly I started my family
early, so my kids are grown, and my marriage is solid, so It's easier to
cope on disability income!
As my M.S. progresses, it's only a matter of time before I'm basically
sitting in a corner drooling on myself. Why Amateur Radio is so important
to me, is that it's a hobby that I will still be able to enjoy, even as my
condition worsens...
From the National Multiple Sclerosis Society:
MS is thought to be an autoimmune disease that affects the central
nervous system (CNS). The CNS consists of the brain, spinal cord, and the
optic nerves. Surrounding and protecting the nerve fibers of the CNS is a
fatty tissue called myelin, which helps nerve fibers conduct electrical
impulses.
In MS, myelin is lost in multiple areas, leaving scar tissue called
sclerosis. These damaged areas are also known as plaques or lesions.
Sometimes the nerve fiber itself is damaged or broken.
Myelin not only protects nerve fibers, but makes their job possible.
When myelin or the nerve fiber is destroyed or damaged, the ability of the
nerves to conduct electrical impulses to and from the brain is disrupted,
and this produces the various symptoms of MS.
People with MS can expect one of four clinical courses of disease, each
of which might be mild, moderate, or severe.
Forms of MS
.
* Relapsing-Remitting Characteristics: People with this type of MS
experience clearly defined flare-ups (also called relapses, attacks, or
exacerbations). These are episodes of acute worsening of neurologic
function. They are followed by partial or complete recovery periods
(remissions) free of disease progression. Frequency: Most common form
of MS at time of initial diagnosis. Approximately 85%.
* Primary-Progressive Characteristics: People with this type of MS
experience a slow but nearly continuous worsening of their disease from
the onset, with no distinct relapses or remissions. However, there are
variations in rates of progression over time, occasional plateaus, and
temporary minor improvements. Frequency: Relatively rare. Approximately
10%.
* Secondary-Progressive Characteristics: People with this type of MS
experience an initial period of relapsing-remitting disease, followed by a
steadily worsening disease course with or without occasional flare-ups,
minor recoveries (remissions), or plateaus. Frequency: 50% of people
with relapsing-remitting MS developed this form of the disease within 10
years of their initial diagnosis, before introduction of the
“disease-modifying” drugs. Long-term data are not yet available to
demonstrate if this is significantly delayed by treatment.
* Progressive-Relapsing Characteristics: People with this type of MS
experience a steadily worsening disease from the onset but also have clear
acute relapses (attacks or exacerbations), with or without recovery. In
contrast to relapsing-remitting MS, the periods between relapses are
characterized by continuing disease progression. Frequency: Relatively
rare. Approximately 5%. |